The last few days have been really good, chest wise. It's a lot clearer and I did manage to get some mucus up today from the bottoms of my lungs. It's really hard work so I just kept falling asleep after Physio sessions, but it's made me feel better overall.
The doctors gave me more diuretics today so the fluid in my legs and stomach has gone down considerably. Still lots there but that's to be expected with the amount of steroids I'm still on. I wake up every morning with my face swollen up with fluid - mum says I look like I've been in a boxing match lol.
I've been having blood tests everyday for about a week now and my veins are ruined. They're having to use veins that are already bruised and it's starting to hurt a lot! Having my fingers pricked for blood sugar levels about 6 times a day is annoying me too now. My fingers are all scarred and tough. And the insulin I have to inject in my thigh and stomach about 5 times a day...ugh. Bruised belly. I suppose it's a good sign I'm starting to moan about the little things.
I feel like it's only up from here though and I'm positive I'll make it to transplant. Mum left after staying 2 nights. She's been so good at looking after me - she deserves a good rest at home I think. Although, I know her and dad are constantly thinking about me.
Also thinking of you, Aisling.ReplyDelete
And wishing you all the luck in the world.
What an inspirational blog. Keep fighting honey, you're doing great.
(fellow Essex girl with friend also on the lung transplant list)
You are doing just great, keep up the good fight!ReplyDelete
You moan as much as you want , Hun. My god you must dread the sight of a needle! But I guess as you know they are necessary you have to be stoic about them. Looks like I'd better bake that cake then? Have good day little one xxxxxxxReplyDelete
I'm a fellow Harefield girl, now almost 5 years post transplant :) I found your blog through Kirstie's article, she's one of our advocates (and isn't she fab!)
Wishing you the very best of luck with your assessment, if I can be of any help or offer any support please don't hesitate to get in touch: emily [at] lltgl.org.uk.
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Glad your Dad resent the link to your blog Aisling. Read the first few posts then mislaid the link. Insightful and captivating in turns, the diary of how you are coping is truly inspirational. I don't do religion so no prayers, I'm afraid, but I am a believer in optimism so that's what I'm sticking with on your behalf. Keep positive!ReplyDelete
Keep up the positive attitudes, Aisling.ReplyDelete
Thinking about you.