Friday, 16 December 2011

Tired now...

Sorry I haven't written a blog in a while.  I've felt so ridiculously exhausted.  My iron levels are low again so they're consulting with the 'blood doctors' what to do.  They can't give me a blood transfusion because then I wouldn't be allowed a transplant.  Hopefully they'll just give me another iron infusion.  I've literally slept the whole day.  Even when I was sitting up, I was finding it hard to keep my eyes open.  Constantly dosing off.  It means I haven't been able to do physio properly either because I just don't have the energy.  Now it's the weekend too, so I doubt anything significant will happen from the doctors side.

I switched back to my old mask because the newer one, nice as it is, it just too big.  the straps aren't short enough for me to tighten it properly so it kept leaking around the edges (making farting noises of course!).  Abbey, my maid-of-honour, and her boyfriend, Olly, came to see me.  I'd never met him before - shame that the first time I meet him I'm like really ill and stuff lol.  Always like to make a good impression on the best friend's boyfriend - ah well!  They brought me a whole wrapped up shoe box of goodies - soap, chocolate, teddy bear, photo album, candles etc.  Cheered me up and it was very well wrapped!  Looked like something you'd get in Lush - all wrapped up nice mm!

I've had a CT scan, ECHO and ECG.  The CT was easy, just had to hold my breath for a few seconds and they scanned my lungs.  Mum saw it and said that all my mucus is right down the bottom of my lungs.  I have no idea how I'm going to get to that stuff!  The ECHO looked normal to me - my heart looked so cool on the screen pumping away with the little valves flickering.  The ECG is just a trace of my heart beat, boring but quick so no problems there.  I also had some blood tests for tissue typing.  They use these to match with the new lungs so very important!

Hopefully once I get my energy back, I can start walking again.  I've lost so much muscle.  I have no idea how I'm going to get it back - it's really hard to imagine being able to walk normally again because I've been sat in bed all this time.

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